Monday, February 17, 2014

Best day ever

  Our first trip to see Lucy from the condo turned out to be a great one despite the weather.  Originally we were going to arrive at the hospital at 7:30 am so that we could leave and come back in the afternoon, but due to the snow we decided an extended visit late morning would work better.

  When we got to the NICU, Lucy's nurse Wendy was just about to do her check-up.  The check-up included taking her temperature and blood pressure, changing her diaper, emptying her lungs, flipping her to her other side and swabbing her mouth with breast milk.  The nurse said I could change Lucy's diaper, but I was too nervous with all the tubes she is hooked up to.  I decided to watch the first time and next time I would do the changing.  She really does not like to be messed with because as Wendy started undoing the bedding she was immediately kicking and crying.  The minute her hands were free she grabbed straight for her breathing tube.  Mike held her hands as the Wendy completed the check-up and then wrapped her back up.  Almost instantly she was calm again.  Then she got two swabs of breast milk, one on the inside of her mouth and one on her lips.  She seemed to really like it!  I think the weirdest part was watching her cry, but not hearing a sound due to the breathing tube.




  Next the cardiologists stopped by for their rounds and discussed the plan for Lucy.  The doctors decided that she will get the Hybrid procedure first.  This is where they use a catheter to place a stint to keep the PDA open and bands are placed around the pulmonary arteries to control flow to lungs.  The procedure has not been scheduled but should happen within the next two weeks.  Depending on how she does after the surgery she will get to come home with us!!  Then she will be monitored through appointments and when she is strong enough the next step would be the Norwood.

We will get to hold her before she goes into to surgery and we are both so excited about that!

Here's Lucy fist pumping with the news that surgery is just around the corner.

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