We moved!!!

What a week it has been.  We officially moved down to floor two last Wednesday and Mike and I moved into the hospital.  Yep, that's right, we pretty much live there.  Last Tuesday, the RN put in an order for a bed as the team felt that Lucy was no longer a critical care patient.  The order is for an open room on floor two with glass doors by the nurses station.  She is higher risk than most of the other patients on this floor so Lucy needed to be in a specific room.  Wednesday afternoon a bed opened and we packed up to ship down there.  To move her, they use wagons.  The nurses pad up the wagon and placed Lucy in there and we wheeled down to our new room.

Once down in our room, the nurse took her vitals and reviewed her scars and any current scabs. Then we got her settled and started unpacking.  The nurse to patient ratio is different on floor two ( it's one to four) so the parents are involved more in her care.  Mike and I had decided that every couple of days we would each take a break and sleep at home.  I stayed the first night.  It is anything but normal.  Since our room has glass doors, we pull the curtain for privacy, but the nurses still need to come in for medications and feedings.  The first night I slept about two hours.  I think Lucy got about seven.  She is a noisy sleeper and at any slight movement or sound I was out of bed hovering over the crib.  Crazy, I know.  Lucy slept from nine to about three and then was up for an hour and a half before settling in for a few more hours.  She slept almost all day Thursday.  I was thinking what a change in her, just moving to a quieter floor where nurses and doctors are not bothering her every two hours.  We should have known better.  Thursday night both of us stayed and again more of the same....sleeping.  Then Friday the old Lucy was back.  She would not calm unless she was being held or patted on the back.  She could fall asleep in our arms but the minute we tried to transfer her to bed, up and screaming.  Needless to say by mid afternoon Saturday we were ready to pull out hair out.  Now I know, that's what babies do and I'm okay with that.  But imagine the doctors also tell you she can't cry for long periods of time and adding to it, you're break isn't going into another room or stepping out your front door for a quick breath.  It is sitting next to the Mike holding a screaming baby on a make shift couch/bed.  And talking to the doctors we felt stumped at what could be making her so crazy.  Helpless is the best description I have.  Thank gosh Aunt Erin came to visit and give our arms a much needed break.  Then I got another break as I went home for the night to relax and get some sleep while Mike stayed with Lucy.